Category: Daily Living
Just curious to know how some of you lost your vision and when.or if you were born blind
I think this topic should be discussed in the getting to know you board, or the let's talk board. However, I was born blind due to congenetal glaucoma.
Some people may not want to share this information because it may be a sensitive subject for them, but I myself don't mind. I was born with retinopathy of Prematurity.
I was born blind, apart from the fact that I can see light and dark. I was born really earlyearly.
I was born blind. My optic nerve just didn't develop all the way. I see light and dark really good.
Had a type of cancer called bilateral retina blastoma. The short version is they eventually removed my eyes because I wouldn't be able to see much out of them anyway, and that'd make sure all the cancer was gone.
I don't mind sharing how I became blind either.
From the beginning. I was born quite late, maybe 41-43 weeks gestation, and I weighed in at a good 7 lbs 6 oz, but I wasn't at all a well baby. I had a cleft lip and pallet that re-arranged basically my whole face with the acception of my left ear, which is normal. I had multiple abnormalities in my left eye, detached retina, an opaque Cornea and a barely functioning optic nerve, or so I thought and so my family and any doctors/paediatricians who looked at me thought. My right eye hardly exists either with the acception of a tiny right eyelid and a smaller than average eye socket. To cap all this then, I couldn't breathe on my own and I had a heart problem. Mum was told by the anaesthetist I wouldn't make it through my first operation to close the 50 pence size hole in the roof of my mouth. I made it through that operation and 15 more after that over the course of 17 years, just so I could at least look as normal as was humanly possible. I had a Corneal transplant at 6 months and mum remembers me being able to see, I'm not sure how much, for at least two months after the transplant, but it was all too good to be true. What sight I had went and left me with colour and light for around three-and-a-half years till shortly before I started school. I've been blind ever since. I was going to have my right eye socket enlarged when I was about six and a false eye fitted, but for some reason unknown to me, that never came to pass. That was that then. I've been totally blind with the acception of some very limited light perception ever since, so I can just see very very bright light from about 50 CM away from the source.
Jen.
I have ROP and also had to much oxy to the brane lol.
I had ROP. It used to be RLF, but I guess it grew up and became ROP.
For those who don't know, ROP is caused by giving a premature baby pure oxygen in the incabator. Seems it burns out the eyes.
Given a choice of sight or breathing, I'll take ROP.
Bob
likewise, bob.
I was born blind, deaf, with a heart murmer and a bone deficiency due to Rubella. The blindness is congenital Glaucoma. Heart murmer closed, no more bone deficiency and several surgeries restored my hearing in both ears at age 5.
R O P.
I was born blind.
Heart murmur's what I had as well. That's why the doctors thought I wouldn't survive my first op at six days old. Then my fontanelle (soft spot on a baby's head where the bones haven't fused) wasn't fusing properly by the time I was about 18 months old, so the doctors thought they'd have to fracture my skull and fuse the sections together that way. Scar ed the living daylights out of my mum, but most fortunately, that didn't happen either, but the to[p of my head's always been a strange semi-circular shape almost and not flat like most other people's heads.
Jen.
Gilman_gal, what eye condition were you born with, if you don't mind sharing?
Hmm, on the topic of skulls being gnot quite the same shape, I was born with a just fine skull, but because of the radiation I received, certain parts of the bone structure didn't grow as much as other parts, so mine's slightly off because of that. Has anyone else who's had cancer had that happen? (I'm just wondering if it's something that happens regularly to those who received radiation when young.)
Count me in as another one born blind due to ROP.
I was born with LCA
Troy
What is LCA?
I was born with rop. I was born two months premature and weighed 3 lbs and lost wait so they had to put me in the incubator.
Kerby
Leber's congenital amaurosis
I was born really early. I wasn't supposed to be born until December, but I was born at the end of August.
The doctors don't have a name for all the problems with my eyes. I was born with one very small, not fully developped, not well-functioning eye. About 18 years ago, I had cataract surgery that was supposed to stop the sight from degerriorating, in which they took out the lesn, and part of the iris. They couldn't put another lens in the eye, and I wound up with basically light perception.
Lou
i was born pre mature, recieved too much oxygen, had laser surgery which failed, ended up visually impaired. actually lost the rest of my sight when I was fourteen due to retinal detachment and cornia damage. glacoma factored in there somewhere too.
i was born with ROP as well.
Hi there, i was late, which, really doesn't have anything to do with my blindness. Mum had a virus while she was carrying me which they think could have caused my blindness. i have a micropthalmic eye with cyst. not sure what else i've got, but definitely that one. i have light perception which i'm more than grateful for.
I was born visually impaired. My mum could see there was a problem with my vision but the doctors and midwife just told her not to be silly and that all babies looked like me when they were born. At age 5 they finally diagnosed me with Septo-Optic Dysplasia, an endocrine medical condition which has all sorts of different effects. Part of this is usually optic nerve hypoplasia (ONH), which again people experience to varying degrees. Reading Brian33's post, I wondered if this was the same condition?
my retina was detached when I was bored. I now just see light and dark and the like.
i'm sure this is on the boards somewhere, but anyway, i went blind in 2000, from the birth control pill. it caused a blood clot on my brain, and cut off the oxygen to my optic nerve.
I had vision but I losed it by Alstroms it has to do with genes and stuff. so I am 1 out of 300 people who have it.
wow i din know that birth control pill can make someone blind. interesting.
Count me in as another ROP hit. I was supposed to be born in Septtember, was born in June. I was 2 pounds when I was born, so I waws placed in the inkabaitor. I had laser surgery done on my right eye, and I had Crio done on my left. Now I have some vision in my right, and just light perception in my left. I also have Nastaganus, so I can't use a monocular for crap. :) I wqnna say aI have something else, but I'm not sure right now.Ok, now I'm sure I have something else, but I can't remember what it is. My vision teacher will be so happy to hear that, since she and I have been working really hard to get me to learn what is wrong with me. :)
I was born blind due to an opticus atrophy, that means that the nerve that is responsible for the sight doesn't work propperly, but I can see shades and some colours. People can only guess that it is because of Chernobyl, but it is just a guess. And, if people do not like to share their story because it is a sensitive subject, that is fine but they do not have to look on here if it is, so why not post this topic?
I was born at 27 weeks gestation due to my mother's drug use while she was pregnant. I weighed 1 pound 9 ounces. I was given too much oxygen and my retinas detached. I had a little vision till I was three, then I lost it over time. I've had three eye surgeries, all failed. So, count me in as another ROP baby. I also have cerebral palsy, also caused by being born prematurely. I am completely blind, but can sometimes detect very bright light in my left eye.
PS. I think it's very good to bring this topic up. It's important that people share their reasons for being blind/disabled, if they feel comfortable, that is. If they don't want to share, then they don't have to. But don't pick on someone for posting a topic just because it's a personal question. There's lots of topics on here that might offend someone, get over it. Anyway, I do agree that this topic is in an inapropriate board, but regardless, I'm glad it's here.
Like SingerOfSongs, I was born with bilateral retinoblastoma. They found the cancer tumors when I was four months old, removed my eyes, and did chemotherapy and radiation to kill the cancer that had spread to my optic nerves. I notice retinoblastoma is not very common. I don't know a lot of other blind people who had it.
I was born blind. I have a brain injury that effective my vision loss.
I was bornthree months premature and I'm one of tripplets, I was born with rop, but I had vision in Both of my eyes, but when I was fourteen, my retina detached in my left eye. so I am now totally blind in my left eye and have 2700 vision in my right. I've had three surgeries to try and fix it, but no luck. I've had seven eye surgeries total, three retina,two cateract, and two lense implants, they had to implant my lensesback in a few years after my cateract Surgery. I've had twenty six surgeries total, but I'll not go into what they were for sense this board only talks about how you became blind.
I'm another one with ROP.
I was born four months early. One of triplets as well...
I lost my sight when i was 17, at the end of my junior year of high school to a condition called, PTC, mean Pseudotumor Cerebri, in other terms, false tumor of the brain. My spinal fluid wasn't giving off normall like supposed to, so...all the fludi built up and put pressure on my optic nerves and cut off all blood supply. I had under went all kinds of treatment, mainly lumbar punctures, and had a shunt placement. but...now all i see is just light in the right eye, have no sight whatsoever in the left.
I tried to take food off my dad's plate when I was three, he had a fork in his hand and decided to teach me a lesson. I no longer have working eyes, but I don't steel food anymore.
my blindness is due to ROP. I also have cerebral palsy and a heart condition. I see lights, shadows, and colors
I am blind due to ROP as well.
Was supposed to be born in october, I think it was, but was born in July.
I also am a Type One diabetic, but that didn't cause my blindness; I was diagnosed with Diabetes when I was 9. And, I use an insulin pump. That does require some sighted help though, but not as much as it used too since I've gotten better with it. I've had that since 2004, so next year, I get a new one. And, I can eat whatever I want, just about when ever I want too, just like someone who isn't Diabetic. I do have a talking glucometer, but I haven't gotten that good with it yet since it's hard to do if you can't see the blood. (Note: Not trying to be gross, but it's true.)
Anyway, hope I didn't keep that too off topic, and if I did, sorry.
I was born 3 months early. Was supposed to have been born in September, was born in June. I weighed 1 pound, 12 ounces. I was a rlf/rop baby as well.
I was born 14 weeks prematurly. I was born in August and should have been born in November. I weighed 1 pound 12 and a half ounces. I was also in the inubater for 4 months and doring that time I developed rop. I have rop as well. I can only have light preseption in my rite eye.
I'm in with the ROP clan! lol.
Hi, Everyone.
I was born with Congenital Fibrosis of the eyes. I have had 7 surgeries to try to fix it. didnt, but at least I have a bit of sight.
I am severely Myopic, light sensitive, tunnel vision and I have absolutely no eye muscles...
I have congenital cataracts.